Feature – Organ Transplanation
Being the recipient of any transplanted organ should come with a new life, a fresh start to begin to live to the full again after having life-restricting dialysis due to the disease or failure of organs.
This is what Pauline Hunt, 49, from Kilmarnock in Ayrshire thought would happen after receiving a kidney transplant from a deceased donor in December 2017. Little did she know that the organ that was meant to give her a fresh start in life, away from illness and hospital visits, would turn into a “death sentence.”
Pauline said; “I woke up the next morning and I felt great. We just had this new life.”
“I was fine for a few weeks and then I got this growth just above the kidney bed. They said it was fluid. But by the end of January I wasn’t feeling well again.” It was clear to Pauline that something wasn’t quite right and her “new life” with a functioning organ was beginning to not look as good and healthy as she thought it would.
“I don’t know how long I have got. I have caught cancer from a donor who should have been so healthy that this shouldn’t have happened.”
Looking at the statistics, according to the BBC, a total of 4,039 people had a transplant from a deceased donor in the UK last year and the risk of the transmission of cancer from the donor is about 1 in 2000 transplanted organs.
Not all recipients are as unfortunate as Pauline has been with her experience however. I thought I’d share my story with organ transplantation to show that having a transplanted organ is a positive experience, which gives seriously ill people the chance to live their life to the full again.
At the age of 11, I was diagnosed with total kidney failure and chronic liver disease. It was a complete shock to my family and the cause of my kidney failure is still known. While some patients may spend years of their life on dialysis, a treatment in which the patient is attached to a machine outside of the body which does the job of the kidneys for several hours of the day, most days if not every day of the week, I only spent 9 months receiving this treatment due to a match being found for my organ donation.
The United Network for Organ Sharing said; “On average, 20 people die each day while waiting for a transplant.” Fortunately for me, I had family members willing to donate me a kidney, as humans only need one functioning kidney to survive. I was on the organ donation list during the time my family members were being tested to donate me their kidneys, and on 25th May 2012 my dad Adrian Whitaker gave me his kidney.
“It was the least I could do, Hannah is my daughter and I wanted to give her another shot at a healthy life.”
When in hospital, I heard many horror stories. For example, I met a boy the same age as me on the day of his transplant. The nurse told me that he had been on dialysis for nine years, and compared to my mere 9 months of treatment, I felt there was a need to spread the word on signing up to the organ donor register.
According to Organ Donation Statistics; “Every 10 minutes another person is added to the waiting list.” When Pauline was informed that there was a match, she will have been very happy about it, as she survived the organ waiting list, like some don’t get the chance to do. However, for her experience to take such a turn was unfair to her. “It shouldn’t have happened. But it did, and there’s nothing I can do to turn that back,” she said.
A spokesman for NHS Greater Glasgow and Clyde said; “The process of transplantation carries known risks, including malignancy, and these are discussed at length at various stages in preparing the patient for transplantation. In this case, two of our senior clinicians both were content to proceed with the transplant following this rigorous process.”
Due to the number of transplants that take place in the UK every year on the increase, “5,090 transplants were performed in 2017-2018 compared with 4,756 in 2016-2017,” according to the Activity Report 2017/18 of Organ Donation and Transplantation, there are going to be cases like Pauline’s where the transplantation doesn’t go as planned and the organ must be removed.
“It’s not even my cancer I’m fighting now, it’s someone else’s cancer which makes it harder for me. Nobody should be fighting somebody else’s cancer,” she added.
Organ transplantation is still being improved and the doctors, surgeons and researchers are learning new things with every transplant. A donated organ while not last a lifetime in a foreign body, so in my case, because I was so young when I had my transplant I will have to have another kidney transplanted in my later life.
Another downside is the lengths the patient must reach to make sure the organ is healthy. This includes taking lots of medication such as anti-rejection tablets, because if these weren’t taken, the patient’s immune system would attack the transplanted organ with it being a foreign body. There are many things that are needed to keep the organ healthy, but it fades into the background of the patient’s daily life and becomes part of regular routine.
Pauline’s life has been cut short due to her transplanted kidney, which is the opposite outcome of what the surgeons are aiming for. John Forsythe, the medical director for organ donation and transplantation at NHS Blood and Transplant said; “In very rare cases it is possible that the donor has a very small tumour which cannot be picked up by the tests which can be performed in the limited time available prior to transplant. This means the transmission of an undiagnosed cancer is a known risk, although thankfully it is very rare.”
Pauline hopes her story is heard by many to make others weary of the risks that come with organ donation, noting that her story is very rare as can be seen with my personal experience and said; “But if highlighting this means they change something, then we are winning.”
Feature – Mental health at university
Going to university for most students is a life-changing experience, teenagers become adults and enjoy their new lives on their own, usually living away from families and in a completely different city.
This is clearly a hard choice to make as young adults but a great choice nonetheless to grasp hold of many new opportunities and have the chance to flourish as a member of society. Although some students may begin to feel homesick but cure this with a quick call home or visit over the weekend, Mind charity said, “one in four students have a mental health illness”, making it far harder to cope with struggles of daily student life.
For Marcia Pearson, how she feels day to day all depends on her mental illness. “A normal day with these illness is fairly unpredictable. Some days can defiantly be worse than others. Some days I can be absolutely fine, happy and calm, then others I can be a nervous wreck, feeling panicked in classes, or just upset and down.”
Marcia, 19 from Bradford, who started attending York St. John University in September 2018, talked about her battle with depression and anxiety especially since starting university.
“Usually when I have one of my worse days, one thing happens which knocks me down for the day. Or, a negative thought can just be stuck in my mind that I can’t get past, which puts me in a bad mindset for the entire day, until I go to sleep.”
Universities are currently facing an “overwhelming” rise in mental illness in students. The Institute of Public Policy Research analysis suggests that in 2015-2016′ more than 15,000 UK-based first-year students disclosed mental health issues. Separate figures from the IPPR analysis record 1,180 students with mental health problems dropped out of university in 2015, with Universities UK calling student mental health “a strategic priority.”
With these statics, it’s no wonder universities are feeling the pressure to provide mental health services for their students, especially when the students want help but don’t know where to go.
Although, some universities are moving forward in providing help for their students who suffer from mental health problems.
Sophie Davis who is studying Psychology at Sheffield Hallam university, moved in at the start of September 2018. Originally from Harrogate, the eighteen-year-old was diagnosed with depression and anxiety but hadn’t ever taken medication for it until she started university as her mental health deteriorated.
“A normal day with this illness is extremely draining as I lack motivation and am constantly tired as I struggle with sleep. Also, very stressful due to the amount of people around and everything going on.” People with anxiety tend to struggle with social situations and are easily overwhelmed by volumes of people or their surroundings.
According to Anxiety UK: “Although avoiding an anxiety provoking situation produces immediate relief from the anxiety, it is only a short-term solution.”
This is a problem when at university because students must attend lectures, seminars and group projects. If someone suffers with anxiety they could avoid attending and could fall behind on their course, adding to stress leading to more anxiety.
Sophie said: “All the socialising has caused me a lot of anxiety as I struggle to talk to new people. Also assignments and reading has heightened my level of anxiety. Since being at university, my mental health has worsened.”
Unlike Marcia, Sophie feels that even though her anxiety has worsened since starting university, that uni has put in precautions to her schedule to help her cope with her anxiety. “They have put in place adjustments to help my learning easier and less stressful such as extended deadlines, individual exam rooms, mental health support worker who I meet each week and much more.”
This is a clear example of a university trying to help its students to better their mental health and make things more manageable.
Sophie recommended one way in which she thinks universities can help other students cope with the management of their mental health and uni work: “Meet and greet sessions with a small number of other students who are struggling to socialise would be helpful to support each other in a safe environment.”
The Guardian said; “Our annual Student Experience survey shows that almost nine in 10 (87%) of first year students find it difficult to cope with social or academic aspects of university life.” First year student Marcia felt that the different deadline dates, combined with other aspects of university life such as managing finances and living on your own have made her feel overwhelmed and extremely anxious.
“I feel as though uni needs to have more exposure of the mental health services that they provide. If I hadn’t had been brave enough to speak up about my illness, I wouldn’t have found out that there is help there if I need it.”, Marica said.
Some ways in which universities can help students begin to better their mental health, given by the Independent is: “Universities need to reinforce healthy behaviours in words and in practice. So while universities might offer advice on sleep, nutrition, physical activity, stress management and coping strategies, they can also help students to act on this advice.”
‘Student Minds’ is looking to “transform the state of student mental health so that all in higher education can thrive.” The charity is working with students and members of the university community to help people like Marcia and Sophie to spread the word about mental health issues and where students can get help.
“We train students and staff in universities across the UK to deliver student-led peer support interventions as well as research-driven workshops and campaigns,” said Student Minds. This is an example of the help universities need to provide to ensure their students are mentally healthy and by making these changes, universities will begin to feel less under pressure with the declining state of student mental health, according to The Guardian.
News Report – Harrogate girl raises £10,000 to mental health charity Mind
Chloe Bellerby, 18, from Harrogate raised £10,000 in April by walking 200 miles from Leeds to London in aid of those suffering from mental health illnesses.
The teenager has blogged about her struggles with mental health such as anxiety and depression, and praised her teachers, friends and the town as a whole for supporting her through this journey.
Chloe said: “London is one of my favourite places in the UK.” London is important to her because it’s the home of Mind Headquarters which made a fitting end for her campaign walk.
Rossett School PE teacher Ricky O’Sullivan said: “It will help to tackle the stigma around mental health, and sharing her story will help others.”
Chloe wanted to raise money for this charity in particular due to the help they provided for a close friend of hers before taking her own life last year, but also said “the service they offer is fantastic and I thoroughly believe they are saving lives through the work they do.”
One in four people suffer with a mental health issue according to Mind. The charity aims to encourage people to speak out about their mental health and listen to others who face similar problems. Mind ambassador Stephen Fry has said on the Mind website: “The mind, like the body, is prone to disease or disorder, and we must end the stigma of mental health problems.”
Chloe continues to raise money for Mind, she said: “I’ve got a lot going on behind the scenes, my book should be published next year.” Chloe stressed the importance of World Mental Health Day as it offers a platform to talk about mental health. “It helps banish the stigma attached and also helps in educating people that may not understand,” she added.
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